- Dr Catherine Heeney
- Research Fellow - Making Genomic Medicine/Global Digital Exemplars
- Science Technology and Innovation Studies School of Social and Political Science University of Edinburgh
- 2.92 Old Surgeons' Hall High School Yards Edinburgh UK EH1 1LZ
- Research Interests
- Research Ethics, Science and technology, genomics
From January 2014 Catherine has been working on the Risk strand of the Wellcome Trust funded project Making Genomic Medicine, headed by Steve Sturdy. The focus of the work is to understand how risk is related to historical developments leading up to and following from the mapping and sequencing of the human genome. Of particular interest is the relationship between risk and the changing understandings of what the gene is and can do, understandings shaped by interaction with various configurations of social and technical factors.
From autumn 2010 until the end of 2013 Catherine was working as researcher based at the Spanish National Research Centre in Madrid in the Department of Science, Technogy and Gender at the Institute of Philosophy. This research focussed on a biomedical research network engaged in the translation of basic genomic science to clinical applications for a common complex disease.
Previously she has worked at the Ethox centre within the Department of Public Health at the University of Oxford on an EU FP7 project looking at the ethical and social issues around the development and implementation of micro array technology into the clinic and a Wellcome Trust funded project exploring the governance of genetic databases in the UK.
Catherine is interested in the flow and use of data in genomic and statistical research both from a sociological and ethics perspective.
Research Ethics, Science and technology, genomics
I am interested in supervising projects dealing with sceintific ethics using an empirical approach, I am especially interested in developments in biomedical data sharing from an STS, ethics and governance perspective.
Find out more about the programmes that I am involved with:
Peer Reviewed Articles
Balancing the local and the universal in maintaining ethical access to a genomics biobank
Heeney, C. & Kerr, S. 28 Dec 2017 In : BMC Medical Ethics. 18, 1, p. 1-11 11 p.
An "ethical moment" in data sharing
Heeney C, 2017, Science Technology and Human Values, 42:1, 3–28
Perspectives on Open Science and scientific data sharing: an interdisciplinary workshop
Destro Bisol G, Anagnostou P, Capocasa M, Bencivelli S, Cerroni A, Contreras J, Enke N, Fantini B, Greco P, Heeney C, Luzi D, Manghi P, Mascalzoni D, Molloy J, Parenti F, Wicherts J, Boulton G. 2014, Journal of Anthropological Sciences.; 92:179-200
Breaching the Contract? Privacy and the UK Census
Heeney, C. 2012 In : The Information Society. 28, 5, p. 316-328 13 p.
Assessing the Privacy Risks of Data Sharing in Genomics
Heeney, C., Hawkins, N., de Vries, J., Boddington, P. & Kaye, J. 2011 In : Public health genomics. 14, 1, p. 17-25 9 p.
Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection
Church, G., Heeney, C., Hawkins, N., de Vries, J., Boddington, P., Kaye, J., Bobrow, M., Weir, B. & P3G Consortium Oct 2009 In : PLoS Genetics.
How to Get There from Here: Re-Use of Administrative Records in the Netherlands and the UK
Heeney, C, 2008, Scripted, Volume 5, Issue 2, August 2008
Governing genetic databases: Challenges facing research regulation and practice
Gibbons, S. M. C., Kaye, J., Smart, A., Heeney, C., Parker, M. & Heeney, C. Jun 2007 In : Journal of Law and Society. 34, 2, p. 163-189 27 p.
Institutional shaping of interagency working: Managing tensions between collaborative working and client confidentiality
6, P., Bellamy, C., Raab, C., Warren, A., Heeney, C. & Heeney, C. Jul 2007 In : Journal of public administration research and theory. 17, 3, p. 405-434 30 p.